Journal‎ > ‎

Great time with Meme & Pepe

posted Mar 30, 2014, 7:43 PM by FightingFor Mya

Ray & Mya got back from Florida on Friday morning. They flew into Pease, so the ride back to the house only took about 15 minutes! They had a great time visiting Meme & Pepe. The weather wasn't as warm as it had been, but it was still warmer than here! Mya really enjoyed spending time with Meme. They walked around the yard, playing with the outdoor cats. They have quite a few, Mya liked all the different colored ones. On Thursday, they drove to the coast to see Dayton Beach. Mya was so excited to see the beach again. It's been almost 2 years since she has been able to go. Last year, she was finishing up chemo cycles, then had to do stem cell transplant; where she had to be in isolation for 100 days. All of that pretty much ate up the whole summer.

We have a few things planned for the next couple of months. We want to get a port put into Mya. This will eliminate her picc line, so Mya will be able to go swimming! It also has an extremely low risk for infections, you don't flush it twice a day (because it stays under the skin), no dressing changes... Just easier all around. We didn't do it before because Mya had to get so much chemo at the same time, we had to have a double line to get all the medications into her body. The single line just wasn't enough. Now, we can do this. We are also going to give Mya a Mickey for her feeding tube. This "button" sits flush against her belly and is a more permanent solution regarding her Gtube. Most gtubes are only temporary, the Mickey is a long term solution. We will be doing both of these things at the same time to maximize her going under. Recovery time for the Mickey is really short, for the port it will be a few weeks. We're going to try to get it done, so Mya can really enjoy the summer!

We are also working with her eye doctor. We want to schedule a surgery for her left eye. We want it centered, so the doctor will go in, use a few of the nerves that aren't working and will anchor her eye and center it. After the procedure, the eye won't move; the eye will only be able to look forward, but it will give her a more natural appearance and give her eye the best chance to keep what eyesight she has it in. We think we will do this procedure closer to the end of summer, but we're not quite sure yet.

So, the next couple of weeks are going to be quite full. Will look to keep everyone updated as the port/Mickey operation gets closer/scheduled.