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Looking forward to a quiet weekend...

posted Dec 6, 2013, 1:12 PM by FightingFor Mya

Mya seemed to have a restful night. She called out around 2:30am, so I gave her 2mls of morphine. Afterwards, she seemed to fall into a deep sleep. Ray went to work this morning & brought Gia into daycare. I checked on Mya, but left her sleeping.

I went in around 8am to give her the morning doses of medications. We talked for a little bit and I got her to drink a couple sips of milk. I almost got her to come out to the couch, but at the very last minute she changed her mind. Said she wanted to sleep more. I'm starting to get the feeling that she might be depressed. Who would blame her, right? I'm feeling pretty depressed myself. So, I put her back on her formula and left her to sleep a bit more. Small goal today is to get her to the couch, at least for a little bit. I got her there last night. Will keeping trying.

Ray's spoken with Dr. Chu. We need to watch for increase of her original symptoms (vomiting, off balance). If we see this, they want to do another MRI. There is a possibility of doing a surgery to relieve the pressure in her head (drilling holes in her head). So, add that to the list of things to watch for.

We are hoping to catch a break and the steroids will give Mya a respite from the increasing pressure. It just seems like the tumor at the base of her head is growing like wildfire & time is running out for her.

We aren't very religious, but we are praying for a good weekend...