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Looking good!

posted Jun 27, 2013, 9:40 AM by FightingFor Mya

I'm in Boston today with Mya, we are back on the 6th floor! Got here yesterday and they said that she was ready to go back. Her blood pressure problem was related to a combination of medications that she wasn't used to having. Once they sorted that out, we were fine to go back to the 6th floor.

We are in room 613. We weren't in our room 1 minute before Mya said she wanted to go to the playroom. She then proceeded to WALK there!!?! She hasn't been out of bed for almost three weeks, so it was a slow walk there, but she made it the whole way there. This child continues to amaze us!! After playing for over 20 minutes, she was ready to go back to her room. And she walked back. Absolutely mind-blowing! All the nurses can't believe how well she is doing.

I will be here until tomorrow. My mom is watching Gia today and Ray was able to get to work. The teams here (transplant & Oncology) feel that if we can get her formula feeds up to 45 Mel's an hour, we are going to be released. Maybe this Saturday or this coming Monday. So soon!!

I think Mya's costume for this Hallloween should be Supergirl. Don't you?

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