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Mya's levels are rising...

posted May 18, 2013, 6:13 PM by FightingFor Mya

Yesterday, Gia and I went down to Boston Children's to spend the day with Mya. Ray was able to get to work for the first time in almost 2 weeks. Mya had an ok day. She has been experiencing quite a bit of pain during this hospital visit because her levels have been so low. So, we've been giving her quite a bit of Oxycotin to get her through. Her ANC has risen to 110 and the more it increases the less pain she will experience. Ray hasn't given me the ANC for today, but I'm hoping it as risen even more.
The goal for today will be to get her out of the bed and moving, at least a little bit.

Gia did really great at the hospital yesterday, she slept most of the day. Once she gets older, it might be a little bit trickier. We will just have to see.

At the hospital, I was able to meet with the lead Oncologist, Dr. Peter Manley. He showed me the MRI taken on Tuesday and with the one taken after Round 2 of chemo. You could clearly see that the chemo had destroyed almost all of the tumor in Mya's head. There is only a little bit left and it is located NEXT to the brain stem, not IN the brain stem. Dr. Manley will discuss the findings with the neurosurgeon to see if she wants to go in and remove the little bit remaining. If she does, that will happen AFTER the stem cell tranplant.

As of right now, the stem cell transplant is scheduled do begin on June 6th. I really want to get Mya home, so we can do a couple of fun little things before she has to go back to the hospital for an extended period of time. It is unknow how long it will take for her to recover from the transplant. So, I feel it is really important to give her some good stuff to hold onto to get her through the rough stuff.

Maybe by this coming Monday, Mya's levels will be good enough for her to come home. Fingers crossed.

Today, I'm taking Gia to her 2 week appointment. Hard to belive that its been that long already. Time is flying by...