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Regular check ups, party coming!

posted Jun 1, 2014, 4:35 AM by FightingFor Mya

Hello everyone!! It sure has been awhile since I've posted. Not too much has happened, which is awesome! Every two weeks, we've been going to Boston for a check-up with Mya. The doctors are pleased with how Mya is handling the drug combination. We are alternating one chemo drug for another every three weeks. Right now, we are on the etopiside. This is the heaviest chemo drug, so we are monitoring her blood levels. If her counts drop too much, we will probably stop it, but right now she is holding steady. Her appetite has returned. She is consuming a tremendous amount of protein, all she wants to eat is pork, chicken, deli meat, you name it! She has filled out and her checks are nice and round again! And of course, fruit! Between Mya and Gia, I'm buying $30 a week in fruit and I still run out before the next weekend's shop!

Mya's hair is slowly returning. But it seems like with the etopiside, she is losing it a little again. *sigh*. Silly thing to get hung up on, but I would just love it if her hair would come back...

On June 14th, we will celebrate Mya's 5th birthday. We didn't celebrate her birthday last year because she did her transplant and they didn't allow anything brought in from the outside, for fear of infections. So this year, we are going a little overboard! We've invited all our friends & family (that are in the area), as well as some of the people that have been really supportive in Mya's care. We will have face painting, a princess bouncy house, an appearance by Elsa from the movie Frozen, maybe even another surprise or two. I need to start getting an accurate head count, but won't be surprised if it's around 60 people! Whew! It's going to be quite a day!! :)

On another note, I have a new job. :) I left my last company and started working at the Portsmouth Naval Shipyard. Ray works here too. I'm an administrative assistant in the Nuclear Test Engineering Division. My supervisor is the Division Head. Everyone there has been really supportive and welcoming. It has been a really large learning curve; coming from a corporate setting to a government entity, but I do like it. The opportunities for advancement are quite substantial. I'm working full time again, so that has been an adjustment, but so far, things are going really well.

What's on the horizon for Mya and her care? We are on track to do another MRI in July. If it looks like the doctors think it's going to look, they will want to inject chemo directly into Mya's spine to combat the tumors that are growing there. It's a day procedure and she will be able to go home afterwards. They are hoping this will get rid of this threat or at the very least, slow it down. I'm hoping that the tumors in her head haven't changed as well. All we can do is wait and see.

I'll try to make another post soon, hopefully before Mya's birthday blow-out! Hope everyone has a great weekend!