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Struggling again...

posted Jan 9, 2014, 7:15 PM by FightingFor Mya

I didn't post yesterday, didn't have much to say. Mya was pretty static. Unfortunately that changed this morning, when she spiked a fever. That earns us an automatic 24 hour stay. Her levels have dropped a little, but not much. They've started her on another antibiotic. Ray asked if we could start her on a probiotic in the hopes of repopulating her gut with the good bacteria everyone has, so the diarrhea would stop. They wanted to discuss it, so didn't do it today.

Her bottom has become so sensitive, that they have put an oatmeal mask on it. The mask, then they wrap over it with a towel. Feel so bad, she has had diarrhea for 2 weeks now. I'm getting really frustrated with the situation. Something needs to be done to help with the runs. It can't go on and on.

We have cancelled Disney again. We just don't know when we can go. Our goal was getting to Disney, now it's just getting out of the hospital. Baby, baby steps...

I'm going down tomorrow afternoon so Ray can come home and get some rest. He'll go to work on Monday, then we will do the switch again. I'll take some of the gifts Mya got for x-mas & some of the stickers too. We'll do crafts, crafts, crafts to help pass the time.

Will take each day as it comes. Hope everyone has a good weekend.