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Trying to get back to school

posted Sep 10, 2014, 3:23 AM by FightingFor Mya

I know that it's been awhile since a post has been made. We've been going to Boston once a week to either get platelets or red blood. Mya's blood levels have been taking a long time to come back up. The radiation sessions were focused on her spine, which is where a person's immune system lives. So, that system has taken quite a beating. Mya's appetite had also dropped off a cliff. She would go all day without imbibing anything. It has been nerve-wracking, to say the least. Our only saving grace has been her stomach tube. We have been giving her liquid formula while she sleeps, so her weight has been stable (thank god!). The last two days have been much better. It seems like she has turned the corner. Her energy level and appetite seems to have returned at the same time.

With the good up tick, we are going to try to get her to school tomorrow. We will have her do a half day again, that seemed to work really well. I'm nervous about her going, but really, really want her to get the experience of being in school.

This weekend we are going to take the kids to the Rochester Fair. I know that the kids are going to love all the animals!