Journal‎ > ‎

Some fun on the agenda for this weekend!

posted May 31, 2013, 10:09 AM by FightingFor Mya   [ updated Jun 1, 2013, 7:49 PM ]
Today, we will look to have a quiet day at home. Ray has been maximizing the time that I've been home to get to work as much as possible to get as much done as he can because he is going to stay with Mya when she goes into the hospital for her next phase of treatment. I will look to get him out and to work at least one day, possibly two days a week. That will give him a much needed break from being at the hospital.

Mya went to Dana Farber yesterday for some housekeeping stuff (bandage change over her IV tubes, cleaning of her G-tubes, etc) and also Ray was able to do her pre-op stuff while he was there. Ray met with the Oncology team and they were very pleased with how Mya is doing. Great news to hear!

Mya is scheduled to go in for surgery on Tuesday, June 4. She will have her IV line replaced with a bigger one, which will help with her receiving her stem cell transplant. Then, she will get a day of recovery. On Thursday, June 6th, Mya is scheduled to being the next phase of her treatment, the stem cell transplant.

To do this, she will receive the highest dose of chemo she can possibly receive. (her age and weight dictate what that is). The purpose of this is to kill off the very last of her bone marrow and to destroy the last remaining bits of her brain tumor. She will then be at her most vunerable yet. She will remain in isolation and receive the transplant of her own stem cells. Then, the wait begins for her bone marrow to grow back and replenish itself.

Dr. Manley said it could happen quickly because she is getting her own stem cells or it could take awhile. There is no way to tell which way it will go.

We have fun planned for this weekend. On Saturday, I want to take Mya to Dover, Main Stret Children's day so she can get some time outside. Then, on Sunday, we have two birthday parties to go to. Luckily, they are at the same place. Mya can't wait to go to the birthday parties! Good memories to help get her through this next tough part!